Due to the rising incidence globally of tick-borne diseases amongst the general population, there are now a great many charities, organisations and support groups out there for you to connect with.
The list below shares a handful of groups that we know, have met, and in some cases have worked with before that may be of interest and support to you.
Each group has its own structure and mission to help patients and practitioners within the Lyme world and community and it is up to you, the patient, to find the one that best suits your needs.
There are also many other support groups that we do not list here. This does not mean that we do not endorse them, but simply that we have chosen a select few that we are most familiar with.
Most charities and support groups have an element of fundraising and events that you can participate in, raise money and meet like-minded people going through the same thing you are. Most have facebook groups that you can join and share your experience with other patients. It can be, for many, an incredibly supportive environment.
Many forums also share information about different treatment approaches which can be very helpful and informative. However, we would please ask you to speak to your Lyme literate doctor before implementing any advice or therapy that you read about online. What may work for one patient, might not for another and to avoid the risk of reactions to medications, incorrect dosages or severe herxes, we strongly recommend that you consult a qualified Lyme doctor before trying a new treatment protocol.
There are some great doctors and treatments in the Lyme world, but sadly there are also those that have caused many patients to have adverse reactions. Be wise and use your judgement, and if in doubt, speak to us and we’ll be happy to help.
Please note that these organisations are in no way affiliated to the Lyme Disease Clinic and we can take no responsibility for the experience or information that you get by connecting with these organisations.